Posts by Hilary Stace
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Access: Fighting seclusion with…, in reply to Rosemary McDonald,
DPA has been active lately, particularly in the public policy area. There is some new activist leadership in Wellington and they have done a lot of submissions and organised a protest against the ableist movie Me before you. Only a couple of part time staff members.
Have on line Information Exchange http://www.dpa.org.nz/page/142/InformationExchange.html
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Not Ashley but some others in similar situation. Case taken on their behalf by Tony Ellis starts this week in the High Court in Wellington. Open to public.. Will be significant. http://www.nzherald.co.nz/kirsty-johnston/news/article.cfm?a_id=980&objectid=11680596
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I only buy Nice Blocks - from a New Zealand company which pays a living wage to its employees. Can you factor that into the equation? And what if you make your own in your own fridge?
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This NY Times article has probably already been posted several times but it explains a lot. How Senator McCarthy's lawyer became Trump's mentor. Also a strange link to Auckland zoo.
http://www.nytimes.com/2016/06/21/us/politics/donald-trump-roy-cohn.html?_r=0 -
Thank you Tom. It seems parenting responsibility never ends when there is a disabled child, however old.
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Submissions required to ratify Optional protocol for UN CRPD. Suggestion here
http://aucklanddisabilitylaw.org.nz/?page_id=257 -
Access: Disability as a wicked policy problem, in reply to Gillian Hart,
I have heard from OTs that they are as frustrated as everyone else. They see what people need and the equipment is available, but their funding is so ring-fenced they can't provide it.
The problem and the answer is political. I would write to Annette.king@parliament.govt.nz about every situation. so she can gather information about how widespread and stupid it all is.
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Apparently other people didn’t find the Sunday doc as anti-disability as me. And the petition got 1200 signatures overnight. Main negative comments seem to be about the cost of Ashley living in the community. It is very expensive keeping him where he is. There is a team trained up to support him in the community and the boss of that provider says he will take on the ‘risk’ of Ashley. The only obvious hold up (apart from a system that doesn’t work) is finding suitable accommodation, but it doesn’t have to be flash – it could just be an existing bach in a peaceful place.
http://tvnz.co.nz/sunday-news/locked-in-video-6482191 -
So there are four such cases as Kirsty as uncovered. http://m.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11676336
Human rights lawyer Tony Ellis has High Court case starting 27 July in Wellington on behalf of two (not Ashley).
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Well Sunday managed to portray Ashley as a dangerous and violent psychotic schizophrenic who hears menacing voices. There was little mention of autism, learning disability, sensory overload, meltdowns, or that internal dialogues are common with most people including those with autism, although they can be confusing to others. Neither did they show his particular skill at making fishing flies.
All served to make him seem extreme and dangerous rather as an autistic person who has suffered and survived inappropriate and abusive treatment including extreme and enduring dental pain, at the hands of the state which is supposed to care for him.
Anyhow there is now a petition to free him, with a link in this latest article by Kirsty Johnston.
http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11676299