Posts by Hilary Stace
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What if we all had solar panels on the roof or our own wind turbine in the garden?
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I love this story, thanks.
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There are 20 DHBs, about 15 NASCs and numerous power companies in New Zealand. You would think there was a standard process for dealing with these issues. Or that one could be developed.
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Access: Social media, disability…, in reply to Angela Hart,
Money. It costs. Government cutting public services.
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Access: Social media, disability…, in reply to Angela Hart,
The way this group was promoted was that it would be full of disability sector representatives and people with lived experience of disability issues. In the end it was only a provider rep, a university rep and a DPO rep (and as usual no remuneration was offered with these roles) along with numerous public servants. I've no complaint about public servants personally but these days they are not allowed to criticise or even critique any Government policies. I applied for the university place, as did several others I know, but am happy they chose Brigit Mirfin-Veitch from the Donald Beasley Institute as she has done lots of great research with people with intellectual disability and is the research advisor for People First. But with so much invested in this group, now we no longer have our usual Disability Survey, and with the huge gaps in disability data generally, it should expect a great deal of scrutiny about its work.
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Access: Social media, disability…, in reply to linger,
Bill Hamilton was my mother's first cousin. I only met him once and didn't realise his significance, although I visited and corresponded with his mother Bettina who was a New Zealand-trained doctor. I recently read his biography Nature's Oracle which covers the development of ideas around evolution during his academic years (c 1960s- 2000). His contribution was about altruism in nature. Fascinating.
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Access: Social media, disability…, in reply to Rosemary McDonald,
There are also the distinction between therapeutic and non-therapeutic interventions. It is often obvious which it is and the ones you mention are in the therapeutic category and even for people in comas there are ethical procedures (now although they weren't so common before the Cartwright Inquiry).
It is non therapeutic interventions which I have an ethical issue with. When there is no obvious benefit to the individual yet there is the risk that comes with operations and interventions. The benefit is for the convenience of a third party. That is when lack of consent and voice becomes a real problem.
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Access: Social media, disability…, in reply to Sacha,
This was only confirmed at the end of last week. I have been asking ODI and others for awhile and they weren't allowed to say anything. Sam from CCS is the provider rep on the new group so had recently found out the details but had to wait till Friday when ODI put info about the group on their website to go public (I am assuming). Initially it seemed that the new group was going to be funded by cutting the disability survey - so much for a wonderful new initiative! - but it seems that the decision was quietly made in 2012 and wasn't mentioned even during the big consultation on the whole census earlier this year. So we get a new group with only 3 sector reps and numerous departmental people which will do what exactly? and still lose the only real instrument for collecting disability data we had.
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There is also a new review of the 1989 Education Act but they only want suggestions that don't cost money and preferably punish the poorer and less well resourced schools and reward the wealthy ones. Inclusion is on a long list of things that boards 'might' consider.
http://www.education.govt.nz/assets/Documents/Ministry/consultations/Updating-the-Education-Act-1989-A-public-discussion-document.pdf -
Blaming children and their mothers isn't an effective strategy.