Posts by Hilary Stace
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Access: Cause, care, cure and celebration, in reply to Moz,
Ethics can be fun :)
Glad to hear it. Because it is really important that we talk about ethics, including bioethics, and try and think and behave ethically in anything to do with disability.
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Access: Disability Stakeholders, in reply to Sacha,
Hopefully, they care about making things better, but not necessarily collectively. It could be just improving one's own salary as a provider of services.
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I use the term 'disability sector' to mean all those who have an interest in disability issues, as opposed to those who haven't. Can be personal or professional. So it can include anyone from disabled people to agencies providing services, to researchers or even journalists. Many of them are likely to know the name of the Minister for Disability Issues, to have heard of the UN Convention on the Rights of Persons with Disabilities and/or be familiar with some of the relevant acronyms such as ORS or NASC. The sort of people who might hear about this blog and read it.
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I think some of these comments are unfair. There are some very good people in DPA, DPOs and the disability sector generally. They do their best with limited people and financial resources. These organisations are their members.
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Access: Cause, care, cure and celebration, in reply to BDB Inc,
I meant - does your own thinking align with any of these approaches? I apologise for using the word 'fit' which has bad connotations in the disability world. I trialled these ideas in a presentation to people who did not come from the disability sector so was encouraging a different way of thinking for those outside looking in.
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Thank you for these responses. This Access blog (all the posts and ongoing) is providing a forum for disability-related discussion and information that is often under the radar.
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Access: Defective, deficient, deviant…, in reply to Sacha,
That's really sad. Sarah Wilson is so brave, and I'm a great fan of her writing. However, Ministerial visits can actually be quite false. Everyone rushes around to present the image required by the media and the official party. Anyone slightly critical or dangerous is kept well out of the way.
Geoffrey Palmer and other luminaries have recently commented on how risk averse the public service is, to the extent that some ministers are not getting the 'free and frank' advice that they should. But some treat politics as one big public relations exercise.
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Access: Words and Disability - The…, in reply to Sacha,
I will be interested to see how the Disability Census - due out in the next few months - deals with it all. They have never been able to capture autism data in any useful way. The other day I found that some agencies categorise autism as a physical impairment (because it is considered a neurological condition and neurological impairments are considered to be physical). So not only is our language contestable, there is little agreement about impairment itself.
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The late Bev Grammer had significant input into this report, and I heard from the Ministry of Health today that they have a new advisory group to implement all the recommendations.
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Access: Defective, deficient, deviant…, in reply to Sacha,
It could be the wording of the act possibly as the HDC Act only applies to patients, and it could be that disabled people in some circumstances, such as in community care, are not considered to be patients. But the Health and Disability Commissioner has made several recent reports on specific incidents of disabled people in residential care.
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The Ministry of Health's recent Russell report Putting people first', should, if properly implemented should address some of the concerns mentioned by BDB.