Posts by Hilary Stace
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Do you remember why you were visiting?
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The first hour was pretty unsatisfactory with technical problems and then I had to go but it is going to be available online soon. I would like to hear what Debbie Hager said as she is working at that intersection between disability and violence (and that Hager family are always worth listening to).
More info on this website http://www.hewawata.co.nz/ -
Excellent post by Giovanni on media criticism of the critics of unethical behaviour http://bat-bean-beam.blogspot.co.nz/2014/12/tending-fascist.html
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He Wawata conference to address the issues raised in the Roguski report is on in Gisborne today 15 December. All proceedings will be available on line
Lots of issues being raised such as the requirements for the UN Convention on the Rights of Persons with Disabilities to be reflected in NZ domestic violence law.
(Since this article Graeme Innes the Australian Disability Rights Commissioner has had his position disestablished by the Abbott government.)
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I think we need another competition trying to guess the WOTY for 2015. See who is most clairvoyant.
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She has also written this great piece for the Standard about the new generation. http://thestandard.org.nz/this-is-not-business-as-usual-this-is-not-some-hippy-over-reaction-this-is-serious-shit/
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Hard News: Public Address Word of the…, in reply to giovanni tiso,
I see a great future for that word and could be WOTY for 2015.
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Has anyone mentioned the very positive 'twitteraunties'?
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Best wishes with all that treatment and preparing for it, Emma. You will be getting positive healing messages from all over NZ. In the evidence-based world technology is getting more precise and efficient all the time. Most people in the field are experts and nice too. And it will eventually be over. But still tough to go through.
That link to the mask thing reminded me of when my just 6 year old had to have one in order to zap the central nervous system as part of treatment for Acute Lymphoblastic Leukaemia (they don't do that treatment any more). Hers was perspex and she kept it for many years until it finally went during a house shift. I didn't realise how much that mask would affect me too. I wrote a little about it this year (and sorry if this is insensitive).
The radiographer fits the mask over her face and clips it in place. S hates that mask. They made it last week by wrapping bandages over her face and then covered them with plaster of paris. When the plaster set they took it away to make a perspex mould. The plastic form now fits tightly over her head with holes for her nose and mouth. There are indelible marks on it to line up with the beam from the linear accelerator; precision in this dangerous treatment is vital. I know she will stay very still. The adults have to leave. The radiotherapists go into their lead lined room to press the right buttons and watch through the darkened window. I go back into the windowless waiting room. I can still hear the buzzing of the machine, which goes on for ages. I visualise the zapping of any stray leukaemia cells that dare to exist.
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Mandy Hager sends Patrick Gower and most of the media to the sin bin for their lack of action over #dirtypolitics.