Access: Your Relationship With Disability
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Angela Hart, in reply to
If anyone knows of any research or particular policies they think I should highlight, please let me know.
It would be interesting to have data on the impact of Funded Family Care http://www.health.govt.nz/our-work/disability-services/disability-projects-and-programmes/funded-family-care-notice-and-operational-policy
on Christchurch people with disabilities, particularly as it excludes partners/spouses from payment which can mean extreme poverty or being forced to rely on outside support. -
Hilary Stace, in reply to
Erin, have you seen the latest Disability Action Plan from the Office for Disability Issues? Directly responding to the CRPD obligations.
We have little Maori/disability research but there is a link to some rare recent research in Southland in this latest May issue of the IHC e-news Hot Issues
There is a collaborative research group based in the DHB doing medical model disability/health research on the impact of the earthquake. Probably not interested in the CRPD but might be worthwhile finding out what data the RHISE group has (Research on health impacts of seismic events).
There are some Christchurch-related Enabling Good Lives disability activists mentioned in the Honours list today - in fact more honours for 'services to disability' than ever before in one list - does that have significance for implementation of CRPD.
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Rosemary McDonald, in reply to
have you seen the latest Disability Action Plan from the Office for Disability Issues? Directly responding to the CRPD obligations
YES!!!! We are on the road at the moment….being much cheaper living in our housebus than living in our home. Enjoying an evening of free wifi….so catching up with the latest. The NEW DAP…what can I say…. what a crock.
When will they stop publishing such garbage? Does anyone actually believe a word of this rubbish? Same shit different dates.
Love what Whaea Tariana was waffling on about…’’disabled New Zealanders enjoying the same rights as others’’….has she forgotten 17th May 2013????
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Angela Hart, in reply to
Here's Tariana's summary of the honours related to disability;
http://www.voxy.co.nz/health/minister-disability-issues-congratulates-2014-qb-recipients/5/192129 -
Hilary Stace, in reply to
That is the biggest disability-related list I have ever seen in an honours list. Good people too. The sector must be getting itself organised about using the nominations process (and a nomination takes about 6 months to go through the system). Anyone can nominate anyone - just need a couple of letters of support.
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New topic please, anybody would think we have nothing to discuss!
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Hilary Stace, in reply to
In the pipeline. In the meantime there is a bit of disability-relevant discussion going on over here http://publicaddress.net/up-front/dropping-the-a-bomb/
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Rosemary McDonald, in reply to
That is the biggest disability-related list I have ever seen in an honours list. Good people too. The sector must be getting itself organised about using the nominations process
Hmmm. Most of those from the "sector" receiving gongs for "services to the disabled" are receiving government funding for their "work".
Most of those honoured have not exactly been loud in their criticism of certain government policies that have impacted negatively on some in the disabled community.
Some, who do have a platform from which to highlight the some of the more appalling inequities in the NZ Disability community have chosen NOT to do this much needed work....and have instead used their platform to support and promote government policies that are aspirational at best....a rehash of the usual bullshit at worst.
As a dyed in the wool anti royalist who takes little heed of such crap, I have come to see the handing out of such honours to be the reward the government gives to those who have sung most in tune with the current political score.
One of those honoured recently posted on how the days of activism on disability issues have passed and now conversations are being had between disabled and the power brokers. Advocacy may still have some place, they said.
Tell that to those who have suffered avoidable deaths at the hands of contracted care providers.
Providers who are almost never held accountable for these deaths.
These honoured people were disturbingly quiet when reports of these deaths emerged....almost as if they agreed with the line that such deaths were par for the course with disabled folk.
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Sacha, in reply to
One of those honoured recently posted on how the days of activism on disability issues have passed and now conversations are being had between disabled and the power brokers.
Link?
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Change of topic but very much about relationship to disability. Dwarf (his self-description) actor Warwick Davis finds out what happened to a Jewish family of dwarf musicians in 1944 when they were sent to Auschwitz and encountered Mengele. Powerful. 46 minutes. Trigger warning. Real history in a time where there was a 'moral vacuum'.
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Rosemary McDonald, in reply to
One of those honoured recently posted on how the days of activism on disability issues have passed and now conversations are being had between disabled and the power brokers .Link?
Unfortunately Sacha this posting was on the DPA NZ facebook page. A page I was eventually removed from by the moderators. This was not an unexpected rejection as I had repeatedly challenged the status quo. What got me thrown off this page was not my usual challenging the lack of outrage about neglect and abuse and homicide of disabled people in care, but when at my partners instigation, I was foolish enough to describe almost exactly the type of care required by a person with a high spinal cord injury....considered to be too "yucky" for DPA NZ. This was during a discussion about a certain TV programme about disability which tends to favour "happy clappy crips do good" stories rather than tell the less pleasant but infinitely more relevant stories.
Perhaps someone who is a member of that page could go back through postings and send you the link? Or verify my (edited) quote.
I have de- facebooked myself so I am unable to help.
This was a large and carefully considered post by this particular person. It pointed to a definite shift from activism and advocacy (which was literally bracketed) to the conversations disabled people were now having with the government, a partnership. Perhaps I have been on this earth too long, as I have no faith whatsoever that those conversations will amount to any real or meaningful improvement in the lives of people with high, very high and complex needs.
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Angela Hart, in reply to
Yes, a shocking documentary piece from Warwick, and things have certainly changed. However we (our society) does not get as upset about the untimely death or the abuse or neglect of very vulnerable people with disabilities as it does about similar events happening to able bodied people. Nathan
http://www.stuff.co.nz/manawatu-standard/news/9607125/Police-investigate-teens-death-in-bath
is the latest in a long line. The police decided not to lay any charges. There was no real consequence. What does this say about NZ attitudes? We have a long way to go.
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